tag:blogger.com,1999:blog-2210737238808722769.post7967001935531250290..comments2022-03-02T01:26:52.749-08:00Comments on My journey to healthy skin: PAIN: Flare has no end in sight meganhttp://www.blogger.com/profile/11033760931628088730noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-2210737238808722769.post-45064542063774006622019-03-24T09:49:03.657-07:002019-03-24T09:49:03.657-07:00I'm happy to report I am healed and have been ...I'm happy to report I am healed and have been for many months now! It took a little over 5 years! All my siblings still use TS. I don't. I'm living proof that TS do cause TSA, and that it can be overcome. Best of luck everyone!Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-40701169926109483322018-04-09T11:02:54.342-07:002018-04-09T11:02:54.342-07:00Hi! I have found a difference in itch level and ju...Hi! I have found a difference in itch level and just overall bloat level and redness when I eat gluten free. I did whole30 auto immune protocol and it helped immensely in other aspects as well, though the diet was very restrictive so I went back to eating "normally". I have been meaning to revisit that though. Thanks for the reminder! meganhttps://www.blogger.com/profile/11033760931628088730noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-2160244115339753962018-04-09T10:58:22.983-07:002018-04-09T10:58:22.983-07:00Thanks for your input. I haven't used moisturi...Thanks for your input. I haven't used moisturizer in about 3-4 years and only bathe/shower once every 2-4 days. I can get away with showering but when itch and skin flakiness get bad, dead sea salt baths make a huge difference. See my protocol here: <br /><br />https://steroidfreeskin.blogspot.com/2014/04/update-dead-sea-salt-baths-for-dry-skin.html<br /><br />meganhttps://www.blogger.com/profile/11033760931628088730noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-64014476737398529642018-04-09T10:55:06.073-07:002018-04-09T10:55:06.073-07:00Hi! I'm still managing atopic skin with eczema...Hi! I'm still managing atopic skin with eczema patches mostly on my fingers remaining. I did cave and use corticosteroids about 2 years ago so I think I'm doing a mini withdrawal now still. But with no moisturizer and dead sea salt baths about every 3-4 days, it's very manageable. meganhttps://www.blogger.com/profile/11033760931628088730noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-27483057476128270962018-02-10T14:07:15.103-08:002018-02-10T14:07:15.103-08:00how are u now?how are u now?] = - Dup DuP- = [https://www.blogger.com/profile/08436275140692776402noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-59348829907500631412016-04-29T12:44:53.388-07:002016-04-29T12:44:53.388-07:00Hi, as someone who has suffered with very bad ecze...Hi, as someone who has suffered with very bad eczema, and been in and out of hospital, with red, yellow weepy skin, I have some advice. I stopped using steroid creams (as you have) and used nothing. No moisturisers, nothing. I also started eating cleanly (which I know you are doing), making green smoothies (in every smoothie I add turmeric and ginger (both are anti-inflammatory), pumpkin seeds, sunflower seeds and fennell), cutting out red meat and eating fruit, nuts and vegetables.<br /><br />You should be careful of eating too much fruit as sugar in the blood can irritate the skin, it can also feed the bad bacteria. I have had success in eating (gluten free) oats every day for breakfast for many months. Oats can change bad bacteria into good bacteria over time, which must improve the skin, as 90% of our immune system is in the gut.<br /><br />Your skin needs rest from everything including mosiurisers. For a while it will be dry and cracked, but eventually (with just a daily shower) it will start to heal, after a few months. <br /><br />After this try Jojoba oil, it is the closest thing to human skin (in terms of an oil and natural skin oils) and it isn't supposed to clog the pores. I can just about tolerate it and my skin hates every moisturiser. I have seen healing when using Jojoba oil. <br /><br />I use this one: https://www.amazon.co.uk/gp/product/B00VSH7LAG/ref=oh_aui_detailpage_o03_s00?ie=UTF8&psc=1<br /><br /><br />Something else you can try is pure Aloe Vera, make sure it is 100% pure, like this one. https://www.amazon.co.uk/gp/product/B0128PJ7T4/ref=oh_aui_detailpage_o08_s00?ie=UTF8&psc=1<br /><br />I have also used this natural moisturiser, which doesn't seem to irritate like doctor prescribed ones. https://www.amazon.co.uk/gp/product/B00MQ4Y2SO/ref=oh_aui_detailpage_o05_s00?ie=UTF8&psc=1<br /><br />I used to take Cyclosporin but stopped it after my blood pressure started to rise. If you allow the skin to heal naturally (with just water in the shower once a day), you should be able to stop the Cyclosporin. Personally I would stop it now, and allow the skin to heal. It may get worse before it gets better, but mine did too. <br /><br />I am not a doctor, but I have been where you are, and been through TSW. Anonymoushttps://www.blogger.com/profile/04679131561371263354noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-52935060176565979832016-04-07T01:17:28.537-07:002016-04-07T01:17:28.537-07:00I haven't started a blog about my tsw nightmar...I haven't started a blog about my tsw nightmare and journey, but in short I unknowingly went through tsw for over a year and then started using tiny bits of steroid cream sparingly and every couple months or so.. I've now been steroid free again since jan 18 2016 and withdraw symptoms were bad but nowhere like the first year when I had been using steroid creams consistently. I have noticed a huge difference in going gluten free!! Have you tried that?GoGoGorgeoushttps://www.blogger.com/profile/01962442039451256570noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-24432304169119934622016-04-06T06:47:07.335-07:002016-04-06T06:47:07.335-07:00Thanks for the tips for healthy skin, be well :)Thanks for the tips for healthy skin, be well :)Mitakkahttps://www.blogger.com/profile/16263672051724293055noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-15574354012178403592016-03-27T16:19:13.552-07:002016-03-27T16:19:13.552-07:00I'm flaring again too. In my 9th month and thi...I'm flaring again too. In my 9th month and this is very painful.<br />I havepaper towels stuck to my inner arm and chest ooze. After I say evertime I'm not going to itch it raw again but something takes control of my body and I sctach and scatch until bleeding. Megan and Dan do you think there is any connection with computer screens and flares as I find myself itchy and worse after being on it. I am going back to grounding to help I think this helps. Ant thoughts???<br />Also I'm posting on my son's computer and name I'm Cheryl and would love to talk with others suffering too. cherylholmes409@yahoo.caAnonymoushttps://www.blogger.com/profile/17170431766932398619noreply@blogger.comtag:blogger.com,1999:blog-2210737238808722769.post-34211464269227618172016-03-25T09:27:23.949-07:002016-03-25T09:27:23.949-07:00Hey Megan, sorry to hear this, I am basically goin...Hey Megan, sorry to hear this, I am basically going through the same thing too. I think just about everyone is. I've healed up 100% so many times now I can't count them. Yet here I am with a huge rash on one arm that had been clear for well over a year. Hands heal for a few days and then bam! Starts with a tiny spot which leads to a major spot within days. As soon as one spot on my hand heals completely, a new one pops up on the other hand! TS are truly disruptive to the body in a way I have never known any drug was or is. Wishing you the best. Hang in there. You have to admit, this is nothing compared to the early days of our tsw.Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.com